Community invited to Haley’s birthday bash
, 2014


Community invited to Haley’s birthday bash

The community is invited to Haley Smith’s 14th birthday celebration from 4 to 9 p.m. Sunday, August 17, on the beach at Willaby’s on the Rappahannock, 327 Old Ferry Road, White Stone.

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Relax on the beach and watch the sun setting while listening to live music and supporting a worthwhile cause, said Lisa Smith.

Music will be provided by Legacy and Itchy Dog. There will be games and activities for kids provided by Just Add People and the youth of White Stone Church of the Nazarene. Entry is by donation. Suggested donation is $10 adults and $5 for children under 12. Food, soda, wine and beer will be provided by Willaby’s at an additional cost.   

Haley Smith of White Stone has Dravet Syndrome, a rare and catastrophic form of epilepsy.

She has had seizures since she was five months old and continues to have several seizures daily. In the past year she has had a dramatic increase in seizures, the majority of which occur in her sleep, said Lisa Smith, her mother.

The risk of death due to seizures is on the mind of every parent of a child with Dravet, she added. Proceeds from the birthday bash will go to the Dravet Syndrome Foundation and to help with Haley’s medical expenses.

Those who cannot attend the event, but would like to make a donation, follow this link, kintera.org/faf/home/default.asp?ievent+1117937.


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